Home / Articles / Tagged: parenting

20 Things Every Parent of Kids with Special Needs Should Hear

20 Things Every Parent of Kids with Special Needs Should Hear

1. 

There may not be anyone else with the same constellation of symptoms as your child but there are people with similar challenges. Find those people. I have never met anyone with all of these same challenges as my kid but I have a strong network within each separate diagnosis. We have made wonderful friends and have found—and I hope provided—a great deal of support within each of these. I just have to pop onto one of my Facebook groups and I’m immediately reminded, I’m not alone.

2. 

We are placed in a position of caring for others nearly constantly. However, you still need and deserve to be cared for. That entails asking friends or family to bring a meal by every now and then, or going for a pedicure, or a date night, or whatever else you enjoy doing. Whatever makes you feel special and taken care of, take the time to enjoy it, you are worth it!

3. 

No one is perfect. We all make mistakes. We can wallow in our goof-ups or move on! Try to shift your thinking, maybe there was a good reason you missed that appointment, that you were sure was on Tuesday but apparently was on Monday. Maybe your kiddo had a tough day at school and just needed the night off. Who knows? But beating yourself up isn’t going to change the situation, so try to move on.

4. 

You may not leap buildings in a single bound or run faster than a speeding bullet but you are a superhero none the less. Every day, you manage situations that a regular parent would think are impossible. You stretch tight muscles, remember pills, inject and infuse the medicine. You hold hysterical children during horrendous medical procedures. You deal with tantrums and meltdowns. And most often manage not to have a tantrum or meltdown yourself. You encourage your child to do things doctors told you they would never do but you never gave up hope. You are a therapist, nurse, doctor, friend and confidante. You are no regular parent.

5. 

Having sat in on several therapy sessions, I have been frustrated by what I thought was premature discharge from therapy on more than one occasion. Since then, I have grown, I have learned and I have come to understand. For children, therapy is play and play is therapy. What I mean is that the best therapists find ways to make my son engage in challenging activities that he otherwise would have balked at, by making it a game that he wanted to play. We took a page from their book and did the same at home.

6. 

Yes this is different from number five. After discharge from therapy, we sought extra curricular activities for my son that would offer therapeutic benefits. He played sled hockey, runs on a track team, learned to shoot archery and takes swim lessons. All of this is therapy. He’s learning, having fun and getting stronger. Win, Win and Win!

7. 

We super parents tend to be fairly busy and often over scheduled. However, while everything on your calendar is important, it’s also important to make time to play, laugh, be silly and just enjoy your kids. Read to them, snuggle with them, engage with them with what’s important in their worlds. Make memories outside of hospital walls.

8. 

You will have to make painful decisions that hurt your heart and leave you questioning everything you thought you knew or understood. Know that you are doing your best, remember number three. I am guilty of agonizing over these types of decisions, they can become really overwhelming to me. Talk about your conundrum with others who get it and trust yourself to make the best decision. Make it move on and once it’s made don’t rethink it. Easier said than done, but worth a try!

9. 

Many of the choices you are forced to make have no right answer, just the lesser of the hard and painful wrong choices. You will do your best but you won’t always get it right no matter how many sleepless nights you spend agonizing over how to handle a situation.

10. 

Yes, you will screw things up sometimes despite the very best of intentions. No amount of torturing yourself will make you feel better, nor will it help you to make better choices. Remember many of the toughest decisions have no right answer.

11. 

It can also be extra rewarding. Make us extra passionate. And will almost always make life extra interesting. With the challenges come the rewards. Sometimes you have to search your heart for the rewards but they are there if you look for them.

12.  

For those folks who are trying to win a marathon, there are no breaks. If you want to stay in the race, you eat, drink and even pee while running. But our marathon will go on for the foreseeable future and beyond. So remember, you don’t need to win, just make it to the end. The guy who comes in last place in the marathon, he took breaks, he stood and drank some water, grabbed a quick bite and used the porta-john for his business, then got back on the road. Give yourself those moments—however brief—that are for yourself. Goodness, you might even get to pee in peace every now and then.

13. 


Don’t let being the parent of a special needs child create or reshape your identity. We are many things, being the parent to a child with special needs is part of our identity. But it shouldn’t be all of our identity. When you focus all of your life, all of your contacts, all of yourself around your child and their needs, who you are can get lost. Find things in your life you enjoy doing, a glass of wine, a hobby, shopping for yourself.

14. 

Certain things get under my skin, we all have our buzz issues, one of mine is people first language. But if you’re not careful, you can become overly sensitive to so many things that people start to avoid your company. Many colloquialisms like “I almost had a stroke”, or “I nearly had a heart attack” are disconcerting to parents whose children have in fact had a heart attack or a stroke. However try to remember that people are not making these comments to offend or upset you.

15. 

Brag about those accomplishments that might seem small to others but are huge for our kids! Our kids develop on their own clock, they learn many skills late and some they never master. A wiggled toe that couldn’t wiggle before, a word, a sentence, a smile, a hug, whatever that milestone may be, share it with those who love you and your child.

16. 

I know how hard it is to hear from parents that their child six months younger than yours is walking and yours isn’t. Or dealing with the well meaning stranger who asks why your 2-year-old is scooting around on their butt rather than being up on their feet. Try to remember that these people lack the context that we are constantly embedded in. Explain, teach, be patient, raise awareness amongst those who just don’t get it. And remember, typical parents deserve the right to brag too and their pride at their child’s accomplishments is not meant as a knock to your amazing kiddo.

17. 

This is another challenging one folks, but worth the work. All kids are different, typical, or with extra challenges and they will grow and develop at their own pace. If a developmental milestone isn’t met as you think it should be, certainly talk to your child’s doctor. Comparing, siblings, cousins, kids in the daycare class, or even comparing kids within the same disability type rarely serves to make you feel better. Your child is unique, and will have their own individual strengths and challenges.

18. 

You know the one who clearly spent 10 hours creating the amazing snack shaped like an animal with licorice whiskers. The one who sends adorable treat bags for every holiday. The one who finds the coolest gifts for the teachers every year. And whose child is always dressed in the cutest outfits that somehow never get dirty. If that’s the mom you are led to be, more power to you! However, I have found that there are always enough of those mom’s in my kid’s classes to keep them in cute snacks and treat bags. Since I have bigger fish to fry, I let them have all the glory!

19. 

Marriage is hard work, period. Parenting is hard work, period. Parenting a child with special needs, is especially hard work, period! For those of you who are married or in a relationship, make time for that relationship away from your children.

20. 

You know your children best. Doctors, teachers, therapists are all fantastic resources but if you don’t feel like you’re being heard, or your child’s needs are being met, it’s very reasonable to get a second opinion. Don’t be afraid to fight for your child and their needs. While the professionals are experts in their areas, you are the expert on your child.

Reference: Dr. Darla Clayton, PsyD, The Mobility Resource

For Extroverts: 15 Ways to Be a Better Parent to Your Introverted Kid

For Extroverts: 15 Ways to Be a Better Parent to Your Introverted Kid

You’re confused by your kid. She doesn’t act the way you did when you were growing up. She’s hesitant and reserved. Instead of diving in to play, she’d rather stand back and watch the other kids. She talks to you in fits and starts—sometimes she rambles on, telling you stories, but other times, she’s silent, and you can’t figure out what’s going on in her head. She spends a lot of time alone in her bedroom. Her teacher says he wishes she’d participate more in class. Her social life is limited to two people. Even weirder, she seems totally okay with that.

Congratulations: you’ve got an introvert.

It’s not unusual for extroverted parents to worry about their introverted children and even wonder if their behavior is mentally and emotionally healthy. Of course, children can suffer from anxiety and depression, just as adults can. It’s important to be aware of the symptoms of childhood depression; sometimes withdrawal from friends and family and low energy signal something more than introversion.

Many introverted children, however, are not depressed or anxious at all. They behave in the way they do because of their innate temperament. The more you embrace their natural introverted nature, the happier your child will be.

1. 

Introverts are hardly a minority. Numbers vary based on a study, but introverts make up 30-50 percent of the U.S. population. Some of our most successful leaders, entertainers, and entrepreneurs, such as Bill Gates, Emma Watson, Warren Buffett, Courteney Cox, Christina Aguilera, J.K. Rowling, Abraham Lincoln, Mother Teresa, and Mahatma Gandhi, have been introverts.

2. 

Think your child can just “get over” hating raucous birthday parties? Think again. Introverts’ and extroverts’ brains are “wired” differently, according to Dr. Marti Olsen Laney, author of The Hidden Gifts of the Introverted Child. She writes that children’s temperaments are innate (although parents play an important role in nurturing that temperament).

Introverts’ and extroverts’ brains use different neurotransmitter pathways, and introverts and extroverts use different “sides” of their nervous systems (introverts prefer the parasympathetic side, which is the “rest and digest” system as opposed to the sympathetic, which triggers the “fight, flight, or freeze” response). Furthermore, a study published in the Journal of Neuroscience found that introverts have larger, thicker gray matter in their prefrontal cortices, which is the area of the brain associated with abstract thought and decision-making. If your child tends to be more cautious and reserved than her extroverted peers, rest assured that there’s a biological reason for it.

3. 

Introverts often feel overwhelmed or anxious in new environments and around new people. If you’re attending a social event, don’t expect your child to jump into the action and chat with other children right away. If possible, arrive early so your child can get comfortable in that space and feel like other people are entering a space she already “owns.”

Another option is to have your child stand back from the action at a comfortable distance—perhaps near you, where she feels safe—and simply watch the event for a few minutes. Quietly observing will help her process things.

If arriving early or observing isn’t possible, discuss the event ahead of time with your child, talking about who will be there, what will likely happen, how she might feel, and what she could say to start a conversation.

If your child is nervous about starting a new school year, visit your child’s classroom, introduce her to her teacher, and find the bathroom, the lunchroom, and her locker before the hustle and bustle of the first day of classes.

No matter what new experience you’re getting him accustomed to, remember: go slowly, but don’t not go. “Don’t let him opt out, but do respect his limits, even when they seem extreme,” writes Susan Cain about introverted children. “Inch together toward the thing he’s wary of.”

4. 

While extroverts feel energized by socializing, introverts can feel drained. If your child is older, she can excuse herself to a quieter part of the room or a different location such as the bathroom or outside. If she’s younger, she might not notice when she’s tapped out, so you’ll have to watch her for signs of fatigue.

5. 

Let her know you admire what she did. Say something like, “Yesterday, I saw you talking to that new boy. I know that was hard for you, but I’m proud of what you did.”

6. 

Say, “You thought you were going to have a miserable time at the birthday party, but you ended up making some new friends.” With positive reinforcement like this, over time, she’ll be more likely to be able to self-regulate her feelings of nervousness and dread.

7. 

Your child may have intense—and maybe even unique—interests. Give her opportunities to pursue those interests, says Christine Fonseca, author of Quiet Kids: Help Your Introverted Child Succeed in an Extroverted World. Softball and Girl Scouts may work well for some children, but don’t forget to look off the beaten path and consider writing classes or science camps. Intense engagement in an activity can bring happiness, well-being, and confidence (think Mihaly Csikszentmihalyi’s state of flow), but it also gives your child opportunities to socialize with other children who have similar passions (and perhaps similar temperaments).

8. 

This will help your child’s teachers know how to interpret her behavior. Some teachers mistakenly assume that introverted children don’t speak up much in class because they’re disinterested or not paying attention.

On the contrary, introverted students can be quite attentive in class, but they often prefer to listen and observe rather than actively participate.

Also, if the teacher knows about your child’s introversion, the teacher may be able to gently help her navigate things like interactions with friends, participation in group work, or presenting in class.

9. 

Teach her to say stop or no in a loud voice when another child tries to take her toy from her. If she’s being bullied or treated unfairly at school, encourage her to speak up to an adult or the perpetrator. “It starts with teaching introverted children that their voice is important,” Fonseca says.

10. 

Listen to your child, and ask questions to draw her out. Many introverts—children and adults—struggle with feeling “heard” by others. Introverts “live internally, and they need someone to draw them out,” writes Dr. Laney in her book. “Without a parent who listens and reflects back to them, like an echo, what they are thinking, they can get lost in their own minds.”

11. 

Introverts tend to internalize problems. Your child might not talk to you about a difficult situation she’s dealing with at school or with a friend although she wishes for and/or could benefit from some adult guidance. Again, ask questions and truly listen—but don’t pry or make your questions feel like an interrogation.

12. 

“Shy” is a word that carries a negative connotation. If your introverted child hears the word “shy” enough times, she may start to believe that her discomfort around people is a fixed trait, not a feeling she can learn to control. Furthermore, “shy” focuses on the inhibition she experiences, and it doesn’t help her understand the true source of her quietness—her introverted temperament.

13. 

Introverts seek depth in relationships, not breadth. They prefer a small circle of friends and usually aren’t interested in being “popular.”

14. 

Anything that pulls your child out of her inner world—like going to school, socializing, or even navigating a new routine—will drain her. Don’t be hurt or think your child doesn’t enjoy being with the family when she spends time alone in her room, perhaps reading a book, playing on the computer, or playing an imagination game. Most likely, once she has recharged, she’ll want to spend time with the family again.

15. 

“Don’t just accept your child for who she is; treasure her for who she is,” writes Cain. “Introverted children are often kind, thoughtful, focused, and very interesting company, as long as they’re in settings that work for them.”

Reference: Jennifer Granneman

 

 

 

How Does Childhood Trauma Affect Adulthood?

How Does Childhood Trauma Affect Adulthood?

For better or worse, every adult lived through their childhood. More often than not, the quality of one's childhood impacts one's adult life in terms of relationships, mental health, and how one sees the world. Each parent is responsible for doing right by their children by providing them with opportunities and otherwise setting them up for success. While good parenting, stable environments, and positive exposure can help a child to be happy and successful later in life, bad parenting, dangerous environments, and negative exposure can cause serious problems in adulthood.

There are many ways to inflict childhood trauma, but it's generally caused by physical/sexual abuse, neglect, or other forms of mistreatment. Trauma can be inflicted by parents, siblings, or individuals in positions of power and authority, and it can leave physiological, psychological, and emotional scars long after the abuse has subsided.

Depending on the longevity and the extent of the trauma, some people can overcome it, living successful and fulfilling lives. This article will cover common effects of childhood trauma, as well as coping tool to move forward to a healthy, adult life.

According to Psychology Today, one of the most devastating impacts of childhood trauma is the effect it has on self-image. Adults who experienced significant trauma as children are more likely to develop a pattern of victimhood thinking. As the name suggests, this state of mind is the belief that one is a victim. Adopting this ideology is incredibly dangerous, as the way people perceive themselves impacts their words, choices, careers, opportunities, and relationships. Individuals who genuinely think the world is out to get them will inevitably attract situations and people who reinforce these beliefs, regardless of how incorrect they may be.

Victimhood thinking is not the only way childhood trauma changes adult behavior. People who were mistreated as children may also become passive and subservient. This usually manifests as the inability to self-express or self-defend and the tendency to bottle up emotions. While some people view passivity as being agreeable or being a team player, burying feelings beneath the surface and not speaking up can have devastating impacts. Moreover, subservience often attracts parasitic individuals who exploit and take advantage of others.

While passivity and subservience are dangerous for everyone, these traits are particularly hazardous for women. If they adopt the behaviors above, women who struggle with unresolved childhood trauma are likely to attract abusive partners or spouses. Abusive relationships, domestic violence, and toxic significant others are nothing to joke about. People have died because they couldn't avoid or escape these dangers.

Like self-image, adult relationships are frequently another casualty of childhood trauma. Psychology Today affirms that people who experienced considerable trauma during childhood tend to attract toxic relationships or even avoid relationships altogether.

This is why people with high self-esteem, confidence, and positive self-image tend to attract beneficial relationships and opportunities. Likewise, someone who lacks these traits generally attracts negative and parasitic people as well as the circumstances that follow.

Left unchecked and unresolved, childhood trauma impacts both personal beliefs and personal relationships. Someone who was abused, neglected, or mistreated as a child may genuinely view themselves as undeserving of loving, supportive, and healthy relationships. Moreover, they may view themselves as unworthy of accomplishments, thus leading to a lack of drive and ambition. In other words, childhood trauma survivors can feel alone, unlovable, and directionless in adulthood.

According to reports from Psychological Science, adults who were exposed to childhood trauma are considerably more vulnerable to depression. Unfortunately, depression is not always taken seriously, but it's a very real mental health issue with a litany of troubling symptoms. Contrary to certain misconceptions, individuals who suffer from depression cannot simply "get over it" or "snap out of it." Ordering a depressed person to do these things can cause more harm than good.

The Mayo Clinic provides insight into the effects of clinical depression. This adverse state of mind affects the way that afflicted individuals view themselves, others, and the world around them. Depression also has the power to engender emotional and even physical problems.

Here are some of the most common symptoms and indicators of depression:

  • Insomnia
  • Drained energy
  • Hopelessness
  • Ongoing sadness
  • Anxiety
  • Lack of appetite
  • Poor concentration
  • Suicidal thoughts/actions

In most cases, individuals with the abovementioned symptoms tend to isolate themselves while neglecting self-care, slacking off work, and alienating others. Attempts to connect with a depressed person may fail, which can be frustrating and hurtful to friends and relatives who genuinely want the best for the individual in question.

Reading about the effects of childhood trauma can be quite unnerving. However, people who have experienced difficulties as children should not become discouraged or lose hope. No matter what happened in the past, the sun always rises again. There is always room for self-improvement, growth, and recovery. Individuals who went through tough times as children can have positive self-images and healthy relationships while living happy, successful lives.

Although self-care may seem somewhat trivial when you're overcoming childhood trauma, it matters more than you might think. Jordan Grey Consulting explains that individuals who survived traumatic childhoods may subconsciously view themselves as unworthy of healthy habits and lifestyle choices. Therefore, they are more likely to neglect their body, eating habits, etc. This creates a vicious cycle of low self-esteem and eventual self-loathing.

Thankfully, the cycle can be broken with healthy habits, such as exercise, a good night's sleep, and healthy eating. Another important form of self-care involves considering the quality of one's friends, romantic partners, and other relationships. The people around us impact our perceptions, choices, and worldviews. This is why ending unhealthy relationships and cutting off toxic individuals is paramount, especially for people who are working to heal wounds from childhood trauma.

One of the most effective ways to overcome negative memories is by creating positive ones. Pursuing hobbies and extracurricular interests not only allows adults to evolve as individuals, but they also help adults to find a sense of purpose and something to look forward to. It's important for survivors of childhood trauma to know that their past experiences do not have to define the rest of their lives. Everyone has the power to control their fate and quality of life.

In many cases, counselors and therapists can serve as the greatest allies for adults who have undergone childhood trauma. This is largely because trained mental health professionals are equipped to help people work through and heal these difficult issues. However, even with professional help and guidance, you won't overcome childhood trauma overnight. It's going to take time, dedication, and commitment. Moreover, overcoming childhood trauma may require revisiting unpleasant memories. The road to recovery will vary depending on the person, and it can be hard, but it will ultimately be worth it.

Here at BetterHelp, our specialists understand that life presents unique challenges to everyone. No matter who you are or what you've been through, your past does not define you, nor does it have to determine the rest of your life. We can support you in moving past it. Only you can decide to seek professional help. BetterHelp is a convenient option for online therapy should you want support on your healing journey. Below are some counselor reviews, from people experiencing similar issues.

 

Your past does not necessarily dictate your future. As children, we're often restricted by the rules and limitations set by our parents and other authority figures. As an adult, you have the freedom to set your own path toward a future built by your own personal goals, morals, and ambition. Stay focused on what's ahead, as the past is and always will be a memory.

  

It's not uncommon to try and make sense of the trauma inflicted throughout your childhood. However, you shouldn't waste too much time or effort on this. There is absolutely nothing that can justify child abuse, so don't strain yourself trying to rationalize it. Instead, try and see it for what it is--a dark chapter in your life that is and was completely out of your control.

 

Now that you're an adult, you're capable of recognizing toxic and abusive behavior, so you can use your past as a learning experience; you know what not to do with your children. You don't have to follow in the footsteps of those who raised you, nor should you. As weird as it may sound, you can put your dark experience to good use by vowing never to inflict the trauma you endured on others.

Childhood trauma can negatively impact the rest of your life, but it doesn't have to be that way. You can heal. As an adult, you now hold the power to change your life. Take the first step.


References: Mason Komay and Avia James